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Stephanie’s Story of Chiari Survival My name is Stephanie Barzellone. I am the daughter of Texas State Representative Jerry Madden. I am a wife, mother of four children, and I am also a Chiarian. My journey with Chiari malformation started on June 2, 2008, when I was injured in a work accident. The saga includes multiple visits and repeated examinations by a variety of physicians over a two year period. Three general practitioners with exams...

The following is a recent story about a Chiari patient from the Ft. Worth Star-Telegram dated June 15, 2011… BY ELIZABETH CAMPBELL liz@star-telegram.com BURLESON — Clyde Walker spends most of his time propped up in a recliner, unable to do much for himself. Standing, walking or even lying in bed sends pain shooting through his body. He has difficulty breathing and swallowing food, and his arms are becoming weaker by the day. He can’t work...