Tag Archives: what to do

Stephanie’s Story

Stephanie’s Story of Chiari Survival My name is Stephanie Barzellone. I am the daughter of Texas State Representative Jerry Madden. I am a wife, mother of four children, and I am also a Chiarian. My journey with Chiari malformation started on June 2, 2008, when I was injured in a work accident. The saga includes multiple visits and repeated examinations by a variety of physicians over a two year period. Three general practitioners with exams...

Jennifer’s Chiari Story

We would like to thank Jennifer Espericueta for sharing her story with us: My Chiari Story Jennifer Espericueta 34 year old female, stay at home mom, former high school teacher After regular visits to a chiropractor for 2 years for neck pain after the birth of my 2 children I finally visited a pain specialist.  That was when I was diagnosed with Chiari Malformation in June 2010.  I was shocked; this was something I had...

Shannon’s Story – Chiari the Killer

This is the story of Shannon Hudson Terry and what might have been had she had this information earlier. Chiari is a highly undiagnosed condition and is widely unknown and misunderstood.  The longer you delay a Chiari diagnosis, the greater chance of additional neurological damage.  Shannon’s Chiari diagnosis was over 5 years after the onset of symptoms, which initially included severe headaches and anxiety, later followed by depression. After she began to lose the use...