Blog

Stephanie’s Story

Stephanie’s Story of Chiari Survival My name is Stephanie Barzellone. I am the daughter of Texas State Representative Jerry Madden. I am a wife, mother of four children, and I am also a Chiarian. My journey with Chiari malformation started on June 2, 2008, when I was injured in a work accident. The saga includes multiple visits and repeated examinations by a variety of physicians over a two year period. Three general practitioners with exams...

“Ruby Revue” Dedicates August 26, 2011 Show in Memory of Shannon Terry

Ruby Revue is a Dallas-based outfit with monthly burlesque performances in Dallas and Houston, and they are also the producers behind the Dallas Burlesque Festival, held annually.  Friday night’s performance (August 26), “Burlesque Around the World”, at the House of Blues in Dallas, Texas was dedicated to the memory of Shannon Terry.  Their efforts included a raffle at Friday’s show, which raised over $150 for the Conquer Chiari Walk Across America, that will take place on September...

J.B. Holmes Needs Brain Surgery, Forcing Withdrawal From PGA Golf Playoffs

Holmes has a condition called Chiari malformations, which affects the part of the brain that controls balance. Symptoms include dizziness and problems with vision and co-ordination. Holmes began experiencing vertigo-like symptoms at the Players Championship in May, the PGA Tour said. “This a relatively low-risk surgery and only takes about an hour and a half,” Holmes said in the statement. “Best of all, there’s a very high success rate in fixing the condition.” Read complete article…. The last...

Another Chiari Sufferer’s Story

The following is a recent story about a Chiari patient from the Ft. Worth Star-Telegram dated June 15, 2011… BY ELIZABETH CAMPBELL liz@star-telegram.com BURLESON — Clyde Walker spends most of his time propped up in a recliner, unable to do much for himself. Standing, walking or even lying in bed sends pain shooting through his body. He has difficulty breathing and swallowing food, and his arms are becoming weaker by the day. He can’t work as a mechanic...